Living with sight loss overview

Links

The Sight Advice FAQ website – this collaborative website from RNIB, Guide Dogs, Visionary, VICTA and Fight for Sight answers questions about living with sight loss, eye health or being newly diagnosed with a sight condition.

Seeing it my way – a universal quality and outcomes framework developed by a group of organisations in consultation with blind and partially sighted people. The framework aims to ensure that people with sight loss, their friends, family and carers have access to the same range of information, advice and practical support regardless of where they live in the UK.

How to register as sight impaired or severely sight impaired – information about all the steps to register as sight impaired.

Guide to registration – information available on Thomas Pocklington Trust website. It also provides practical guidance on living with sight loss.

Henshaws Life Hacks – tips and tricks for people living with a visual impairment.

Lighting and assistive and inclusive home technology – guides from Thomas Pocklington Trust.

Eye care – information available on the College of Optometrists’ website.

 

TRAINING

Skills for Seeing – a free training from Macular Society, supporting people with central vision loss use their remaining vision more effectively.

Living with Sight Loss – these RNIB courses are free and community-based, for adults of all ages. They provide information and advice on a range of topics as well as an opportunity to meet and share experiences with other people living with sight loss.

Finding your Feet – an RNIB program for anyone aged 18 and above, recently diagnosed or looking for practical solutions to come to terms with living with sight loss.

 

DATA and STATISTICS

Key information and statistics on sight loss in the UK – information and data from the RNIB.

Eye health reports – the RNIB five-year overview of ophthalmology services across England (2018).

Sight Loss Data Tool – this RNIB tool provides information about visually impaired people and those at risk of sight loss at a local level throughout the UK.

 

USEFUL ORGANISATIONS

The following organisations provide support, information and advice for people living with specific sight conditions:

Albinism Fellowship – a volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families.  

Aniridia Network UK – a support group and charity in UK and Ireland for the rare genetic condition aniridia.

Birdshot Uveitis Society – a support group for people with Birdshot Chorioretinopathy.

Deafblind UK – charity for people who have a combined sight and hearing loss.                          

Diabetes UK – charity that cares, connects and campaigns for people affected by, or at risk of, diabetes.

Esme’s Umbrella – the campaign group raising awareness of Charles Bonnet Syndrome.

International Glaucoma Association – the charity for people with glaucoma, providing information and advice and funding research for early detection, diagnosis and treatment. 

Leber’s Hereditary Optic Neuropathy (LHON) Society – charity for people with Leber’s Hereditary Optic Neuropathy.

Macular Society – information and support for people with macular conditions.                       

Nystagmus Network – a UK registered charity which provides support and information, raises awareness and funds research.

Retina UK – formerly known as RP Fighting Blindness, Retina UK supports people affected by inherited progressive sight loss and invests in medical research.

SENSE – a charity that supports and campaigns for children and adults who are deaf blind.                         

 

Share your content:

We know the very best people to help Visionary members are other Visionary members.  Organisations who share a similar vision and mission, and experience similar problems and predicaments but who may have found some nimble solutions and resolutions. Please do consider sharing your guides, plans, templates to help others take their work forward. We can, if you wish, password protect your work so that anything you share will be seen exclusively by Visionary’s network. If you have great knowledge to share, please email your documents to Visionary

Henshaws’ Seven Steps – (592KB) – sight loss organisation Henshaws has produced a really useful poster to help people with a visual impairment work through 7 steps to get the help they need.

Sight loss: what we needed to know (977KB) – a collaborative document put together by people who have experienced losing their sight.

Starting out – Benefits, concessions and registration (48 pp., 1MB) – this RNIB guide is one of its Starting out series, aimed at providing people essential information about living with sight loss.

Understanding Sight Loss – Flexible learning for staff and volunteers (36 pp., 603 KB) – a guide from RNIB aimed at its staff and volunteers, to provide them with the necessary knowledge and understanding of sight loss.

DATA, STATISTICS and REPORTS

RNIB – Eye health and sight loss stats and facts (24 pp., 569 KB)

APDF The State of the Nation Eye Health 2017 – A Year in Review (52 pp., 1 MB)

RNIB Sight Loss Data Tool Version 3.2 FINAL_0 (5 MB)

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